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"A spark that lights the way toward a solution"

-André Delambre
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2006–2007 PROJECTS OF THE AMYOTROPHIC LATERAL SCLEROSIS SOCIETY OF QUEBEC (ALSSQ)FUNDED BY THE FONDATION ANDRÉ-DELAMBRE

1. Loan program for equipment and self-help aids
2. Extension of the group support program to Montreal and remote regions
3. Provision of adapted transportation and caregiver services to enable patients to take part in           ALSSQ activities
4. Updating of the ALSSQ Web site
5. Client Services Co-ordinator
6. Portion of the salary of a social worker 

CLIENT SERVICES HIGHLIGHTS
Period from July 1, 2006 to the present The mission of ALSSQ’s Client Services is to continually improve the quality of life of people with ALS, to provide support services and information at all stages of the disease and to serve as a complete information and resource centre.


The Society meets the needs of patients, interveners, informal caregivers and families wherever they live in Quebec, in Canada and abroad.

Telephone support
 -The nature of the calls varies.
 -Main interventions: information; psychosocial support, support; consultation; referrals to proper resources 
-Clientele: people with ALS; people awaiting a possible ALS diagnosis; close relations of a person with ALS; helpers of an ALS sufferer (family, friends); health care professionals
- More than 300 mailings of information to ALS sufferers, their close relations and interveners

Support group
The themes that are dealt with in support groups vary according to the wishes expressed by participants at each meeting.


September 5, 2006: Evolution of medical research into ALS (Dr. Monique D’Amour)
October 11, 2006: Housing resources (Claude Gingras, CR Lucie-Bruneau)
November 8, 2006: Family relations – Une blessure de l’amour: l’emprise (empowerment) (Marie-Hélène Ouellette, psychotherapist)
January 31, 2007: Genetics and ALS (Isabelle Thibault, CHUM – Notre Dame Hospital research centre)
March 14, 2007: Exercise and ALS (Stéphanie Robidoux, Lasalle CLSC)
April 18, 2007: The social worker and ALS
May 30, 2007: Palliative care (Patrick Vinay, Notre Dame Hospital)
September 12, 2007: ALS (Dr. Monique D’Amour)
October 10, 2007: “I don’t want your wheelchair.” (Accepting self-help aids) (Daniel Berthiaume, educator, and Diane Milot, occupational therapist, CR Lucie-Bruneau)
November 15, 2007: Tools to help communicate (Paula Stone, occupational therapist, and Michelle Bourque, speech therapist, CR Constance Lethbridge)

Coffee hours
Get-togethers over coffee are held on average once a month and give continuity to support groups.

Regional presence
In order to reach out to persons with ALS, raise public awareness of the disease, respond to the needs of Society members and provide improved services throughout the province, we have continued to expand the project entitled “En route with the ALS Society,” which consists of an ALSSQ team that travels around the province.

Goals/objectives
•  Increase access to the Society’s services throughout the province
•  Inform neurologists and other health care professionals and the media about the disease
•  Bring together a team of volunteers in each region to take part in a new Volunteer Services program
•  Recruit new members
•  Establish contacts with ALS sufferers in every region
•  Choose a new place to hold the Walk for ALS (to build ties within the community and raise funds and public awareness about the disease)
•  Put in place a network and tools to ensure continuity of services in the region

Activities held
•  Trois-Rivières, in the Mauricie, November 15, 2006
•  Sainte-Thérèse, November 29, 2006
•  Quebec City, April 3, 2007
•  Sherbrooke, April 17, 2007
  Gatineau, in the Outaouais, November 8, 2007
•  Longueuil, in the Montérégie, November 23, 2007


As well, a day of activities is being planned for Quebec City and for Sherbrooke in winter 2008.
Our goal is to visit at least four regions a year and to set up partnerships with centres (i.e., ALS clinics or rehabilitation centres) to assist us and to maintain this important service in these regions.

Loan program for equipment and self-help aids
Equipment loans have increased and the service continues to grow every month. We answer requests quickly (in about a week) and there is no waiting list.
We responded positively to more than 144 new requests for equipment and loans.


Loans for minor work
We continue to provide loans for minor work to adapt homes.


Transportation and caregiver assistance during our support activities
We received a few requests to cover transportation costs for members who were participating in support groups and coffee hours.
We also received several requests for caregiver and respite services. This program will be developed and implemented in the next few months.


Christmas Dinner
The dinner was held on December 18, 2006 at St. Georges reception hall. Christmas Dinner has become a well established tradition and is much appreciated by our patients, their families and friends. The dinner is an occasion to celebrate, share a meal, sing and, especially, to forget the difficult challenges of daily life for a few hours. The 2007 Christmas Dinner is planned for December 6.


Updating of the Web site
The graphics for the new Web site have been completed, and we are in the process of finalizing the content. Client services and volunteer coordinatorThe client services and volunteer coordinator was hired on January 15, 2007.

 

The Amyotrophic Lateral Sclerosis Society of Quebec (ALSSQ) is a non-profit community organization whose mission is entirely devoted to improving the living conditions of persons suffering from ALS and to supporting their family members. Founded in 1983 by ALS sufferers, their parents and friends, the Society is duly constituted with letters patent in accordance with the provisions of Part III of the Quebec Companies Act. www.sla-quebec.ca

 



 

 
 
 
 
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2540, Daniel-Johnson, #755
Laval (Québec) H7T 2S3

Tel: (450) 978-3555
Fax: (450) 978-1055

   
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