Fondation André-Delambre - ALS
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"A spark that lights the way toward a solution"

-André Delambre
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MNI
CHUM
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Scientifique Research Committee
Scientifique Research Committee
CHUM

2006–2007


2006–2007 Grant from the Fondation André-Delambre

 


Support for Research, Clinical Care and Teaching

 

During this period, with the financial support of the Fondation André-Delambre, we continued the neurogenetic project already underway with Dr. Guy Rouleau’s team. The project consists of gathering information on demographic and epidemiological data, and collecting blood samples from patients with amyotrophic lateral sclerosis. The aim of the project is to find the genetically susceptible factors for the disease. Our research assistant works with us to identify potential candidates based on the protocol, to present and explain the project and consent form to the patients and have them complete the required detailed questionnaires, and to take blood samples and send them to the appropriate person on the team. She also manages the various aspects of the project related to the research ethics committee: the preparation of documents, correspondence and the annual report, and the archiving of documents.

We also have a research project on magnetic resonance spectroscopy in amyotrophic lateral sclerosis. Our research assistant is responsible for identifying patients who are eligible for the study, arranging radiology appointments based on the protocol, and taking care of the consent forms, medication needs with the research pharmacy and various aspects related to the research ethics committee.

Our research assistant maintains a patient log for the amyotrophic lateral sclerosis clinic and a databank on the various aspects of the disease. We conducted an evaluation of the services offered to patients in our health care system, including resources, technical aids, and specific forms.

During the year, we welcomed residents from the Université de Montréal’s neurology program for internships in our amyotrophic lateral sclerosis clinic. The goal was to familiarize them with the disease, the various research projects underway and the aspects of clinical research. They were able to learn what the various facets of the disease are, how to make a diagnosis, how to do the required medical workup, and which services these patients require.

During this period, we presented seminars to doctors and other health care professionals to familiarize them with the disease, its clinical course, evolution, prognosis and research, and held information sessions for patients and their families.

Monique L. D’Amour, MD Neurologist      

Frédérique Souchon, MD Neurologist

 


 
 
Fondation André-Delambre

2540, Daniel-Johnson, #755
Laval (Québec) H7T 2S3

Tel: (450) 978-3555
Fax: (450) 978-1055

   
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